"He who began a good work in you will carry it on to completion until the day of Christ Jesus. " Philippians 1:6

Friday, February 4, 2011

The Big Doctor Appointment

Where do I start? Do I categorize by upcoming surgeries or what I didn't know about kids with Down Syndrome or by all the speciality appointments we will be going to in the next few weeks? Hmmm.. maybe I will just bullet my thoughts as they come!

  • Gracie has been referred to a pediatric ophthalmologist where she will get glasses ASAP.
  • She most likely will require two eye surgeries; one for her droopy eyelid and the other for her blocked tear ducts. This will be determined by the ophthalmologist.
  • She is being referred to a pediatric ENT where she most likely will be needing surgery to have her very large tonsils and adenoids removed. Yep, I was excited about that one after dealing with Bryson's recent 10 day tonsil ordeal!!!
  • She is seeing a pediatric specialty dentist where she will most likely need to go under general anesthesia to have all her needed dental work done.
  • She is being referred to a pediatric cardiologist for a heart echo cardiogram to make sure Gracie does not have any unidentified heart condition that is common with Down Syndrome.
  • She is being referred to speech, occupational and physical therapists.
  • She is having a cervical and spine xray to rule out a common vertebrae deformity in kids with Down Syndrome. This is the one I did not know about and does sound frightening as if she has this vertebrae deformity, she has a higher likelihood of fracturing this vertebrae. For now, no more of her cute somersaults until we confirm she does NOT have this deformity.
  • She is being tested for leukemia that is common in kids with Down Syndrome. This will also give them a baseline of her blood counts so they can monitor her more closely. She does have knee pain that scare the bajeebies out of me. Truthfully, this is my biggest fear out of all that was discussed at this appointment.
  • She is being tested for every parasite known to man, lead and all the other international adoption fun stuff.
  • She is being tested for thyroid conditions that are common with Down Syndrome.
  • She is going to be tested to determine whether she has Mosaic Down Syndrome or just Down Syndrome. The doctor was very encouraged by all of Gracie's abilities and would not be surprised if she does not have Mosaic Down Syndrome. The only difference between the two is that with Mosaic she could have a higher IQ and perhaps function better later on. It really doesn't matter to us, Gracie is perfect just the way she is!
  • She had her first breathing treatment in the office as she has been sick since I got her and was wheezing at the appointment.
  • She received three shots in her leg that have left her miserable and with a fever.
  • She is in the 70% for height and 30% for weight for girls with Down Syndrome.
  • She has an inherited skin condition that can be relieved with a special lotion.
  • She was such a good girl for spending two hours in one room at the doctor's office!
  • She is my girl!!!! None of this stuff can get me down! Well, maybe the tonsillectomy as the memories are so vivid in my mind right now!!!!
Can't have a post without a cute cupcake photo!!! Here is a photo that shows her pure joy at being in our family. Tonight was Marissa's 8th birthday. Gracie belted out the Happy Birthday song to her new sister. It was adorable just as she is!!
Life simply doesn't get any better than this!!!

12 comments:

Jean said...

Happy Birthday Marissa! Okay Marissa is now 8, Gracie is 6 and the boys 7?

Do not worry about the tonsillectomy- We had 2 kids at once have them out and really it was a piece of cake! Since she is your cupcake- I am hopeful she will do well!

Sounds like all good tests to have done (a bit busy for Mom but good to get them done).

You can do this!!

Sherrie said...

You know what is just SO amazing??? That this little girl is so precious, and YOU are her mama, and just think about her never having the chance to get all this medical help!!! So hard to think about our babies not getting what they really needed, a family, love and good medical care to give them the best possible chance of a wonderful, blessed life. I know you are thanking Jesus every moment of every day for giving Gracie this chance in life.

Nancyh said...

I am here if you need any help well that's till the 23 then about 2 weeks after that. Gracie is amazing and will continue to amaze all as she takes on each of these hurtles she has you and Robert at her side after all as well as all your friends and fellow bloggers and ALL their prayers & love. Wow that's some powerful prayer chain.
Positive thoughts prayers, & love.

Anonymous said...

Wow! That is a lot to swallow! Praying for positive results. Keep us posted.

Michelle said...

I love the cake, very pretty!! Beautiful girls!

Shelly said...

Lots to look forward to when we get home!!! :o)
Sounds like alot, but one step at a time, and it will all be done!
I think you're going to need to post some video some of Gracie's cuteness, soon!

Scrappy quilter said...

Happy Birthday marissa.

I have been suspecting that she might have Mosaic Down Syndrome. Those appointments will come and go faster than you think. I'm sure with her determination, she'll do well in all of them. Hugs

Annie said...

Wow, we will be praying for wisdom through it all! Hang in there!

Suzie said...

Happy birthday to yet another Reed!! Yeah Marissa!

That is quite the list of bullets. Baby steps... I'm with you Sally. We leave Monday for the 11 hour drive to Portland where I will likely have a few bullets to post, too. It's all worth it when I hold Seth's hand at night and he strokes my fingers as he drifts off.

Loving the pics. Missing that "Gracie smile". She brightened my day every day in China.

Anonymous said...

Praying that each of those bullets will disappear one by one with as little trauma as possible. Love the picture big Happy Birthday Smile!! That smiles is worth about 2 dozen bullets isn't it!!!! Had such a great time catching up with you last night. So glad you were able to take some time out from your beyond busy Mama life to come to Britt's wedding. Take care! Love, Switz

Annie said...

You will get through it all and I amcertain that your beautiful, amazing Gracie Mae will get through it all with ease! The Lord will be with you both and carry you through!!!

Christian said...

Wow I didn't realize all of the different doctors and specialists. I knew about some of them. I'm sure you and Gracie will do fine through all of them. One bullet at a time.