- Gracie has been referred to a pediatric ophthalmologist where she will get glasses ASAP.
- She most likely will require two eye surgeries; one for her droopy eyelid and the other for her blocked tear ducts. This will be determined by the ophthalmologist.
- She is being referred to a pediatric ENT where she most likely will be needing surgery to have her very large tonsils and adenoids removed. Yep, I was excited about that one after dealing with Bryson's recent 10 day tonsil ordeal!!!
- She is seeing a pediatric specialty dentist where she will most likely need to go under general anesthesia to have all her needed dental work done.
- She is being referred to a pediatric cardiologist for a heart echo cardiogram to make sure Gracie does not have any unidentified heart condition that is common with Down Syndrome.
- She is being referred to speech, occupational and physical therapists.
- She is having a cervical and spine xray to rule out a common vertebrae deformity in kids with Down Syndrome. This is the one I did not know about and does sound frightening as if she has this vertebrae deformity, she has a higher likelihood of fracturing this vertebrae. For now, no more of her cute somersaults until we confirm she does NOT have this deformity.
- She is being tested for leukemia that is common in kids with Down Syndrome. This will also give them a baseline of her blood counts so they can monitor her more closely. She does have knee pain that scare the bajeebies out of me. Truthfully, this is my biggest fear out of all that was discussed at this appointment.
- She is being tested for every parasite known to man, lead and all the other international adoption fun stuff.
- She is being tested for thyroid conditions that are common with Down Syndrome.
- She is going to be tested to determine whether she has Mosaic Down Syndrome or just Down Syndrome. The doctor was very encouraged by all of Gracie's abilities and would not be surprised if she does not have Mosaic Down Syndrome. The only difference between the two is that with Mosaic she could have a higher IQ and perhaps function better later on. It really doesn't matter to us, Gracie is perfect just the way she is!
- She had her first breathing treatment in the office as she has been sick since I got her and was wheezing at the appointment.
- She received three shots in her leg that have left her miserable and with a fever.
- She is in the 70% for height and 30% for weight for girls with Down Syndrome.
- She has an inherited skin condition that can be relieved with a special lotion.
- She was such a good girl for spending two hours in one room at the doctor's office!
- She is my girl!!!! None of this stuff can get me down! Well, maybe the tonsillectomy as the memories are so vivid in my mind right now!!!!
Friday, February 4, 2011
The Big Doctor Appointment
Where do I start? Do I categorize by upcoming surgeries or what I didn't know about kids with Down Syndrome or by all the speciality appointments we will be going to in the next few weeks? Hmmm.. maybe I will just bullet my thoughts as they come!
Can't have a post without a cute cupcake photo!!! Here is a photo that shows her pure joy at being in our family. Tonight was Marissa's 8th birthday. Gracie belted out the Happy Birthday song to her new sister. It was adorable just as she is!!
Life simply doesn't get any better than this!!!